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When the Aints Came Marching In

Photo courtesy of Pete Miller via Flickr.com. https://www.flickr.com/photos/pmillera4/

Photo courtesy of Pete Miller via Flickr.com. https://www.flickr.com/photos/pmillera4/

I like baseball. I can’t say I’m the perfect fan – I don’t follow it the best in the world, and I don’t understand the finer points of the game. But I enjoy watching a game, especially live. As an American of a certain age, I think  it was unavoidable that I would have some connection to baseball. I remember when I was two or three, my mom bought me a little plastic Baltimore Orioles helmet (although I thought the logo was of Chilly Willy).

When I was older, I watched baseball on TV. Indiana doesn’t have its own major-league ball club, so we split our loyalties among the closest teams: the Chicago Cubs, the Chicago White Sox, and the Cincinnati Reds. Our local TV station aired the Reds, so that’s who I followed. Later, the station switched affiliations to the Cubs, and though Harry Caray was fun to listen to, I couldn’t really get into the Cubs. Read the rest of this entry

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Every Color of the Rainbow

I have a conflicted relationship with Independence Day (or the Fourth of July, as it has been branded for so long). Patriotism doesn’t make a lot of sense to me. The idea is that you’re supposed to be proud of the country you’re born in. But I didn’t have any control over what country I was born in. I just happened to fall out of a woman in 1974 at roughly 39°N 85°W. I didn’t do anything for that. And if you tweak any of those factors slightly, relative to the size of the world and the scope of history, suddenly I’m not born in the United States anymore.

There are, of course, plenty of people who choose to move to the United States, just as there are plenty of people who choose to move to other countries, and, given the incredible obstacles that have been established to prevent someone from moving from one country to the next, one could take pride in having accomplished such a move. And I know people whose parents and grandparents and great-grandparents made such a move, and the narrative of that move has been passed down to them, so there is a kind of pride by proxy, and I can get that. But I don’t have that narrative in my family. Most of my ancestors arrived on this continent as colonists, before there was a United States. They were always citizens of another country even though they lived here. The rest of my ancestors were dragged here against their will on slave ships. Read the rest of this entry

Update: Out of Order

A month ago, I posted about the plight of my friends Claire, Brian, Alexis, and Ethan Robertson*, and how the way the System as it currently operates in America undermines the ability of hardworking citizens to provide for themselves in the event that the least little thing goes wrong. And the Robertsons have had more than their fair share of things to go wrong.

Well, things have just got a hell of a lot worse.  In the past two weeks, Ethan has lost all of his disability income. This is an innocent nine-year-old boy who suffers severe autism and requires twenty-four-hour supervision. And to top it all off, Alexis has lost her medical insurance, as well. The argument is apparently that, now that she has turned 18, her $3,000-per-*year* income is sufficient for her own treatment of autism, depression, and various other disorders. Even if she had the enormous amount of money to pay for private insurance, she would be turned down, because the president’s health-care reforms are not in effect yet, and she would be denied because she has “pre-existing conditions“.

I can’t even begin to quantify just how much this pissed me off–and I’m not even directly affected. Can you imagine what it’s like to be in the Robertsons’ shoes? If you can’t, then you’d better have good insurance, because you are in dire need of a heart transplant.

I may not be able to quantify it, but I can sure as hell depict it. Photo by Troy C. Boucher Photography

Someone commented to my prior post, “I wish there was something I could do.’ And I passed on to her the same encouragement I pass on to all of you:

Quit being satisfied. Get angry. Do something with that anger. Fight tooth and nail with anyone who dares presume that the answer to poverty is “get a job”. Such an argument suffers from Tinman-Scarecrow Syndrome: no brain and no heart. Demolish any argument not founded on compassion. Listen. Listen to other people’s stories. Not “my cousin Jimmy knows this one guy who knows this one guy who…” stories. Take them straight from the horse’s mouth. Don’t presume to know people you don’t actually know. Remember what your parents taught you–don’t judge a man till you’ve walked a mile his shoes. And if your parents didn’t teach you that, then it’s up to you to make up for their deficit and get that lesson in your head and heart. Impart good values to your children and your grandchildren. If you don’t have children or grandchildren, then it’s your responsibility to impart good values to those who can pass them on to their children and grandchildren. Work to build a society where a man is not punished for circumstances beyond his control.

*Names changed to protect privacy.

Out of Order (Forever?)

Photo by Andrea R (flickr.com)

Claire Robertson* is one of the strongest people I know. She survived a kidnapping as a child and a sexual assault as an adult, and fights Post-Traumatic Stress Disorder as a result. She worked as a nurse, but a serious accident meant back surgery and physical disability. During the surgery, doctors discovered that she has a rare congenital connective-tissue disorder that will only get worse.

She fought for several years through multiple denials to procure Social Security Disability Insurance (SSDI). When she finally received it, her monthly payments were $650 per month—nowhere near the $1,000 per month she had been told.

Her husband Brian holds a Master’s degree in history. However, the downturn in the economy has eliminated all hiring in his field, vacancies only coming when someone retires or dies. He looked into going back to school to teach junior-high or high school, but a change in the curriculum meant that he would have to work for a semester in a full-time unpaid internship, with no time to earn an income. He works from home as a medical transcriptionist, a field in which wages have plummeted over the past several years as more and more of the work has been outsourced to India.

Claire and Brian have two children, both of whom have autism. Their daughter Alexis graduated from high school a year ago, but presently lives at home as she struggles with major bouts of depression and suicidal ideation, as well as with the same connective-tissue disorder Claire suffers. Alexis hopes to go to college to study veterinary medicine. She has been trained as a PCA and serves in this role for their son Ethan, but the work is only sporadic—Alexis made less than $4000 last year. Ethan is nine. A bright and loving child, he nonetheless battles severe autistic symptoms. He is enrolled in special-education courses and requires various rehabilitative services.

Brian averages $1400 a month; however, his income can vary greatly because it depends on how much work he is assigned. Sometimes he earns nothing in a pay period. On rare occasion he gets paid overtime. When Claire started receiving SSDI, the family lost their food stamps entirely, and Ethan’s monthly SSDI payments dropped from $641 to $350—not really enough to pay for Ethan’s medical needs. All but Brian receive medical insurance through the state of Minnesota, which has one of the most generous state-insurance programs in the United States. When Claire began receiving SSDI, she was automatically moved to Medicare insurance (she had no say in the matter), for which she must pay $101 per month out of pocket, on top of high copays on her dozen-plus medications. Brian was dropped from state insurance entirely because his employer offers insurance—never mind the fact that the premiums in the employer’s program exceed Brian’s entire income. Thus Brian has no way to treat his own multiple medical issues, which include high blood pressure, sleep apnea, and depression.

Two years ago, the Robertsons were kicked out of their home illegally by a new landlord, and didn’t have the resources to fight it in court, so they found themselves temporarily homeless, living out of a motel. They found one house in their price range and bought it, but it has major structural issue, including a roof that needs to be replaced, for which they lost their homeowner’s insurance and now must pay for the roof out of pocket. Moreover, the house does not have a ramp for Claire to use her wheelchair, and the Robertsons cannot afford to build one on their own. They have requested assistance from Habitat for Humanity, but that organization must wait for funding approval from the government before they can proceed. They hope to have the ramp installed sometime next year.

The Robertsons just received a letter stating that, because of the handful of checks for which Brian was paid overtime, not only have they lost Ethan’s $350 monthly check entirely, but Social Security has declared the loss retroactive—the family must pay Social Security $1400 to repay the SSDI payments they had been receiving since May.

I write all of this for two reasons. First is to bring awareness to just how severely broken the assistance system is in the United States. It operates on a binary structure—either one is entirely on the System or entirely off. Furthermore, the income threshold at which one is kicked off the System is well below what one can afford to live on (unless one is in subsidized housing, which, because of long-standing application freezes nationwide, for all intents doesn’t exist unless you’re already living in it). Almost anything one can do to move oneself into safe financial straits is prohibited. Some people “know” the System is broken (and even more broken now because of cuts to poverty programs like Head Start and public housing, thanks to Congress’s sequester). But knowledge often is not enough to prompt one to action, which is why I asked Claire if I could share her family’s story. I wanted to put a face to what is going on in America.

The other reason I am relating this story is because I wish to serve notice to anyone who would dare write off the Robertsons as “lazy” and would tell them to “just get a job”. If you think that, first off, you haven’t read a damn word I’ve written up to this point.

And where do you suggest they “get a job”? Jobs are scarce, and the ones that are available are part-time and/or pay next to nothing nothing (thanks in large part to profit-hoarding and a refusal to invest in the country’s infrastructure, education, etc.).

If you had the gall to express such ideas to my face or to the Robertsons’, I wouldn’t blame myself or them if I/they slapped you—and I’m a pacifist. But folks never express these ideas face-to-face. They do so from the safety of blog comments sections, ballot boxes, and legislative office.

Finally, if this is your response, I’m going to question how you were raised. I was raised not to judge any human being until I had walked a mile in their shoes, and if you were raised differently, then I would ask you to make up for your poor parenting and re-educate yourself. If you don’t, you’re the lazy one, for not exercising your brain or your heart.

*Names changed to protect identity.